Jake was born on September 13, 2003. I had a normal, healthy pregnancy and we didn’t know there was a problem until the morning after Jake was born. Feeding issues and apparent physical anomalies sent him to the NICU where he spent the next 18 days being poked and prodded and tested for various syndromes. We were released from the hospital without a diagnosis, but were told there is definitely “something wrong”. The unknown was the worst. The fact, it was absolutely devastating. We were the first time parents and in complete shock.
Wednesday, December 21st, 2011
Friday, April 1st, 2011
I want to let you know how much my family and I enjoyed the absolutely magical party on Sunday! It was such a special day for us I cannot even begin to express our gratitude! My daughter Caroline, your Angela’s House child, was positively entranced by every aspect of the day – from the balloons to Abby Cadabby to the “dancing girls”! My son got his face painted and never wanted to wash it off!
Friday, October 1st, 2010
There is a great question that many people ask of me. How do I or our great dedicated employees bear to see the despair and pain of or families. First, the families we meet are wonderful and they are our inspiration. For someone to understand how we do it, they need to understand that out agency’s foundation was based on parents creating our nonprofit and its mission.
Sunday, April 11th, 2010
Our long story is definitely not one to be jealous of although it does have a very happy ending, Dylan! Dylan has proven to us that there is strength that lies within that we never knew we had. Looking at Dylan you would never know what he has been through, he spends his days thinking that he is the most normal 2 1/2 year old boy in the world.
Thursday, October 1st, 2009
Casey is our 2 1/2 year old son. He has a personality that can light up a room. His smile can melt your heart and break it all at the same time. Casey was born with a genetic skin disease called dystrophic Epidermolysis Bullosa. He lacks theanchoring fibrils that hold his layers of skin together.
Any friction or trauma causes his skin to blister or shear off. He must wear clothes made from soft cotton and the seams must be covered or they rub and cause blisters.
Saturday, April 11th, 2009
Angela’s House is our official name now. The legal work is complete and we will now be know as Angela’s House for both the two homes we have that care for medically fragile children and the families we work with that care for their children at home.
We hit a new milestone this past year. We helped 400 children with special health care needs that are medically fragile, chronically ill or living with a life threatening illness.
Wednesday, October 1st, 2008
Preparing to write my message this fall made me appreciate even more the support we have seen come our way this year. The economic down turn has hit us all but we have been blessed with new support that is helping us to fill some of the void from our slow economy.
Earlier this year we were successful in expanding our home care programs. We now have two great service coordinators that are assisting families newly referred to us.
Friday, April 11th, 2008
Angela’s House helps to coordinate the complex array of services needed to support families so that they may care for their medically frail children at home. Angela’s House offers a home-away-from-home option for medically frail children when they cannot live at home. We understand the day-to-day, year-to-year support is very important for the well being of the children and their families.
Monday, October 1st, 2007
As I sit to write this note, I recall 18 years ago when my wife and I were in the hospital faced with the devastation of watching over our frail daughter Angela who was lying in front of us not knowing what to do, and a strong feeling of being alone. This is why when I see the people and organizations in this newsletter that have voluntarily stepped up to help us, it is just amazing.
Wednesday, April 11th, 2007
Grace is a 3-year old girl born premature but in good health. Due to an accident when she was two weeks old, she suffered a severe hypoxic event when her lungs collapsed. The lack of oxygen caused severe trauma to her brain. She has Cerebral Palsy, Hydrocephalus, Shunts, Periventricular Leukomalacia, Cortical Blindness, Severe Gastroesophageal Reflux, G-Tube, and Seizures. She is unable to speak, crawl, or even lift her head.