Archive for 1999

  • Thursday, October 21st, 1999

    Village Times: One Family’s Suffering Prompts Effort to Help Others

    Any parent who has been up all night with a child who is tearful, ill and distressed knows how exhausting caregiving can be. But what happens when caregiving never ends? What happens when a child is fragile, brain damaged, attached to feeding tubes, unable to recognize anyone and has a short life expectancy? What is the impact on families? Read More

    Posted in In the Media | No Comments »
  • Tuesday, September 28th, 1999

    Newsday: Tightening the Family Ties

    Most of them are children who cannot feed themselves, sustain eye contact or show convincingly that they know their own mothers’ faces. Sometimes they seem to know them, sometimes they don’t. In another age, most probably would not be alive.

    There are thousands of kids like them, kids whose lives were spared thanks to the miracle of modern medicine – but with strings attached: feeding tubes, tracheostomies, brain damage, lives so fragile they will be in the hospital more often than not, or need 24-hour nursing care, for the duration. Read More

    Posted in In the Media | No Comments »